蔡磊病情接近终末期，最新发文|als|治疗|渐冻症|癌症患者|终末期|蔡磊

12月30日，蔡磊发布了一段失声前录制的视频引发关注。

Cai Lei, former vice-president of JD.com and an amyotrophic lateral sclerosis (ALS) patient, revealed in a pre-recorded video released on Tuesday that his condition has progressed to a near-terminal stage, even as he vowed to continue working to push forward treatment breakthroughs.

确诊渐冻症已超过6年，疾病逐步剥夺了他的行动和语言能力，只能依靠眼控仪与外界交流。

2024年8月，“失声”前的蔡磊录下一段特殊的视频。在录制时，所有人都希望不要有播放的一天，因为这意味着他已经无法说话。

Diagnosed with ALS more than six years ago, Cai has gradually lost the ability to move and speak and now relies on an eye-tracking device to communicate. The video was recorded in August 2024, before he lost his voice, and was originally intended to remain unpublished unless his condition deteriorated.

谈到自己，蔡磊表示，这是去年拍摄但本希望尘封的视频，那时候还可以说话，面部，嘴巴，下巴、牙床还没有萎缩塌陷变形……

但在提到患者时，蔡磊表示，几位患者的激动欣喜视频却令人振奋！“现在，部分类型的渐冻症新病人可以站起来了，可以活下来了！后天元旦，新年信，我再分享更加振奋的视频！”

In the video, Cai said that while his own health continues to worsen, recent medical advances are bringing genuine hope to other patients.

视频公布了多个渐冻症患者的治疗案例，还有蔡磊在2025年底写下的话。

蔡磊表示，自己的病情已经接近终末期，日夜经受着常人无法想象的疼痛和折磨，但会通过眼控仪继续满负荷工作。

“历史已经被部分改写，单基因渐冻症已经重大突破，可以说攻克了。病人不用再死去，早期用药甚至可以回归健康生活，其余散发类型的希望也越来越大。”

"History has already been partially rewritten," he said, noting that some single-gene ALS patients may now survive and even return to normal life with early treatment, while prospects are also improving for other ALS forms.

He added that he will continue working intensively with the help of assistive technology and promised to share more encouraging developments in the coming year.

视频发布后，话题“蔡磊病情接近终末期”冲上多个热搜榜第一位。

在评论区，不少人在为他加油打气。

Following the video's release, the topic "Cai Lei's condition approaching terminal stage" quickly topped Chinese social media trending lists, with many users expressing support and admiration for his determination and resilience.